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- CIDP RECOVERY IMPAIRED MOBILITY TO ABLE-BODIED?
WHATEVER IT TAKES KEEP GOING CIDP & RECOVERY? There is a famous expression in English: ' When the going gets tough, the tough get going' –meaning when the situation becomes difficult, the strong will work harder to meet the challenge. Sometimes, when we are in a tough situation, an inspirational quote or saying can help us calm down and focus on what we need to do. Quote On Life "Whether you think you can or you think you can't, you're right". Henry Ford (1863-1947) Ford's quote could be applied to life in general. Have a positive or a negative outlook. It's up to you. 'It's not rare if it happens to you'. Traveldriven quote WHAT IS CHRONIC INFLAMMATORY DEMYELINATING POLYNEUROPATHY UNDERSTANDING CHRONIC INFLAMMATORY DEMYELINATING POLNEUROPATHY SIGNS OF AND EXPLANATION OF CHRONIC INFLAMMATORY DEMYELINATING POLYNEUROPATHY OUR PAINTBALL GROUP SNIPERS DEN MELBOURNE I second from left as a lefthanded paintball shooter THE OPPONENT'S CHINESE SOLDIERS? First and only paintball experience. Great day out by all on a hot Melbourne day. We received many hits and returned many back. Eight weeks before CIDP diagnosis. CONNIE & WAYNE ON HOLIDAY HAPPIER TIMES AFTER HOSPITAL DISCHARGE & HOME WITH CIDP My CIDP recovery journey is written below. Living with a rare serious condition from before the onset of the COVID-19 pandemic. Hopefully the worst of CIDP is now behind. In 2019, after hospitalisation for CIDP, a personal decision was made to work on and expand the Traveldriven website over the long term. This choice was primarily driven by the need to stay occupied during an unknown period of impaired physical immobility. The aim was to engage both mind and body. In a positive way. A realisation was that if any significant recovery was to occur it may take years. After CIDP hospitalisation hand dexterity along with normal touch sensation were some of the first physical functions to return. Fortunately, I had basic touch-typing skills. Initially this helped to gradually regain hand and finger coordination whilst also creating an online website. One step at a time through trial and error with no prior website design experience. The hope was to build something useful and relevant to myself and others. The goal was to give purpose to the many days and months of CIDP recovery, (if it happened) that lay ahead. Try to maintain a positive outlook with keeping busy. As imagined, a hard thing to do when physically very limited for the foreseeable future. At times, website building was the only daily focus. Below is primarily published with a view to help other's recently GBS/CIDP diagnosed. An in-depth dive into CIDP for such people. The story written by me as a self-improvement reference. How CIDP changed life in general and for those interested in rare conditions from a non-medical perspective. A factual account. No embellishment needed. As those with CIDP would no doubt agree with. There are virtually no online non-medical long term personal points-of-view to be found about CIDP. The following is a personal perspective based on first-hand experience with CIDP, detailing at first the weekly progression. It primarily highlights positive developments over the ensuing months and years. 9,116 words 35 minutes read Chronic Inflammatory Demyelinating Polyneuropathy An immune system disorder. The myelin sheath of peripheral nerves is damaged. In my opinion, CIDP brings much uncertainty. Saintly patience is required for nerve self-repair. If any repair does occur, it often will take years. CIDP-damaged nerves exhibit a variety of unique symptoms. Following is one individual's perspective. Introduction I live in a small regional city. Located in Victoria, Australia. It is January of 2019 no health issues and fifty-nine years of age. I am working as a food industry employee on the factory floor involving physical work and long periods of standing. Although physically demanding work, I had no problem carrying out work duties. I thought I should get a doctor's check-up. Something didn't feel right. Affecting Daily Life A General Practitioner appointment was booked. I explained to the GP I was experiencing numb toes and tingle sensations. The gist of the consultation was to come back if things did not improve in three or four weeks. Shortly thereafter, a weekend day drive to a coastal tourist town near to the famous Great Ocean Road in Victoria left me wondering how safe my driving was. I own two sedans. One manual and one automatic. Driving my automatic transmission car in the busy main street I stopped in traffic. A car behind and a car in front. I depressed my right foot on the brake unaware the side of my foot was still on the accelerator pedal. Smelling tyre smoke and hearing the car's engine revving I quickly switched the ignition off. I realised I did not have enough feeling in my feet to feel the pedals. An accident avoided and a cautious drive home. Acupuncture? It was suggested acupuncture may be beneficial. Unsure of driving ability. I travelled almost three hours by train to the Melbourne inner suburb of Footscray. With a newly acquired hobbling gait, I walked from the train station to the appointment no more than two short city streets away. Sceptically, I agreed on a two-hour consultation. The Chinese acupuncturist, an older man with a tenuous grasp of the English language at best, inserted needles in both my feet and upon withdrawal all were bent at right angles. The acupuncturist commented the normal needle curvature was severely bent out of shape on all needles. Evidence of extremely taunt tendons. He recommended daily use of a foot spa, the spa water diluted with straight whisky and a further two weekly sessions. Feet submerged in bubbling whisky and water. An incredulous recommendation in my opinion. I returned to my home unconvinced acupuncture made any difference. I felt no different after the one acupuncture session. I declined two further expensive sessions. I did buy a bottle of Jim Beam discounted on sale. I already owned an unused foot spa. I used it once as recommended. I drank the bulk of the whisky over several dinners. An entertaining story. In an Immobile State & Past Trauma I was struggling to lift my feet for no apparent reason. All my fingers tingled and all my toes felt numb. Accessing my automatic car parked in my driveway, I stumbled completely backwards and fell on my lawn. Fortunately, I didn't hurt myself. Not a misstep. But all leg strength momentarily lost. Soon thereafter on another occasion I went out for coffee drinks at a local café with a few family members. We were sitting at an inside table. I raised my beverage in one hand and gripped around the mug’s handle ready to drink. Instead, l spilled the full mug of hot cappuccino coffee over my shirt and table and there was spillage onto the floor. I could see looks of astonishment in those around me. I felt the same. Suddenly experiencing very weak hand grip coordination for no reason. A concerning development I had no answer for. Within two weeks I returned to my local GP for a second appointment. The doctor referred me to a Melbourne neurologist a few hours' drive away. The first appointment was for ten days' time in Ballarat. This is a large regional city in Victoria. Apparently a visiting Melbourne neurologist attends a consulting room once per month. I spent the time waiting housebound and unable to work. It took six attempts to park my automatic car in the garage behind the roller door. Now unable to drive safely. In these days following my second GP visit both my leg strength and self-balance was deteriorating. I had lost feeling in both feet and my gait was unstable and weakening. At times I had to steady my walking with hands placed on walls inside my house. No public transport is available where I live. I live alone as my wife of twenty-three years passed away with breast cancer two years before. Connie, my wife, would have been whole heartily supportive one hundred percent, as I would of her. Waiting for Medical Help Now, nearly two years later I needed to see a specialist. What is it? At least I knew I didn't have cancer. I have no home support. Several days after my second GP appointment I could barely walk around inside my home. I telephoned the Melbourne neurologist's reception twice and tried to bring the appointment date forward. I offered to get myself to the Melbourne clinic as my condition was deteriorating. My walking is becoming weaker. Reception replied the original appointment was the earliest date and all earlier times were fully booked. I asked if I could speak to the neurologist. 'No, he's with a patient'. Ok, so I waited at home with a stoic attitude thinking everything will be ok after a week or two of rest and time off work. I didn't think a further GP appointment would be helpful anymore. I thought I would get through the weekend, then go to my specialist neurology appointment scheduled by the end of the week. My respiratory condition felt normal during this time. A further five days passed housebound and I was then driven to my neurologist appointment. I attended a medical consulting clinic used by visiting Melbourne specialists. Located in Ballarat. Well over an hour's drive away. Upon seeing myself struggling to walk and assessing absent nerve reflexes the neurologist, who was a prominent specialist in his field, immediately admitted me to St Vincent's Hospital Melbourne. He telephoned the hospital on the spot. Luckily, I carried a small overnight case. I was allowed no time to return home to pack a bag. I was told by the neurologist no medical transportation was available to convey me to hospital, but I must go directly and immediately to hospital. Upon hearing this my driver, a family member, kindly agreed to drive me without delay to the Melbourne hospital. A further one and a half hours' drive and one hundred and twenty kilometres away. I distinctly remember the neurologist telling me I think you have GBS or CIDP. ‘Let's hope not CIDP’. Of course, I was clueless of these remarks. I, like many, not realising the serious health implications of these unheard of conditions. In both Guillain-Barré Syndrome and Chronic Inflammatory Demyelinating Polyneuropathy one's own healthy immune system turns rogue and attacks the peripheral nerves. Both are classified as autoimmune disorders. GBS is seen as an acute disorder occurring once only and is of a relatively short duration. CIDP is the chronic counterpart of GBS. Both can strike anyone, male or female and at any age. Guillain-Barré Syndrome and Chronic Inflammatory Demyelinating Polyneuropathy have the same symptoms on presentation to a neurologist. Also, identical treatment. Unknown Cause of Symptoms, Work Difficulty CIDP origins are idiopathic, (unknown). However, one online United States research paper documented a small cluster of GBS/CIDP cases among workers in a piggery attributed to Campylobacter Jejuni. This is a bacterial infection and may be transmitted via slaughtered pig, sheep or chicken. Medical publications such as the National Library of Medicine, Journal of Neuroimmunology etc, cite up to 40% of those diagnosed with GBS/CIDP showed an infection with Campylobacter in the few weeks prior to symptoms appearing as the result of the onset of nerve demyelination. Nerve demyelination symptoms such as numbness, tingling and weakness in all limbs. No Campylobacter was found in the many blood tests I had in the hospital. I don't recall having common symptoms of Campylobacter. The short answer is I never had a Campylobacter infection. Although I can't state this with one hundred percent certainty. Medical literature cites livestock workers with a positive viral infection to Campylobacter Jejuni have a one in a one thousand chance of acquiring GBS or CIDP. For the general population there is a one in a one hundred thousand chance of acquiring GBS/CIDP with no exposure to livestock. Hospitalisation ♿ On the drive to the hospital, I realised this is to be my first hospital admission as a patient in over forty years. Thinking probably, it will be a few weeks until I return home and back to work. Looking back with hindsight it’s fortunate to be naive and not know what might lay ahead. I began intravenous immunoglobulin (IVIG) infusion of Privigen that night, Friday. A mixture of purified antibodies and donated blood plasma. Each infusion takes about three to four hours. Administered through a catheter needle inserted into a vein in the arm to overwhelm the immune system's own antibodies attacking the nerves. In the following days I was moved to another ward. The third consecutive day of IVIG and a late finish of 3 am ending the loading dose of IVIG treatment. Symptoms, Not Good Here I was, experiencing extreme walking difficulty. A patient in a multi bed public ward. I could do little more than observe the surrounding hospital routines. Doctors, nurses, patients and visitors. With sometimes a dose of chaos mixed in. An adjacent patient was visited by a female family member. During one of her visits she collapsed creating an emergency situation. Nursing staff immediately called for doctors and issued a loud PA emergency announcement. Doctors in their white coats came out of nowhere huddling around the collapsed visitor now unresponsive. The blonde woman was laid down on the hospital bed previously occupied by the brother she was there to visit. Rather frail in appearance. He looked no more than forty years of age. He is sitting by the bedside as they both had been out of the building to smoke a cigarette and returned. The reason why she collapsed was extremely low blood sugar levels. A diabetic emergency. The woman was stabilised after a good amount of time passed and admitted to hospital on another floor for overnight observation. An odd pair, her brother was always unwilling to engage in conversation with those around and he presented a general defensive posture. In the meantime, all of this commotion delayed the commencement of my IVIG infusion by several hours. As mentioned to a 3 am finish. Within days I had a lumbar puncture (spinal tap) showing mild elevated protein levels. An orderly pushed me in a wheelchair down to the hospital's first floor where a nerve conduction study was undertaken in a small room. Lit with defused lighting and strong rays of sunlight filtering through partially drawn blinds. The muted sound of city traffic passing outside. Two electrodes were placed on each limb to measure nerve responses. I was clueless of the process and didn't ask questions. Staying silent. Graph printouts were examined. The two medical technicians involved in the study discussed findings between themselves. I gathered that the nerve conduction study showed total and partial blockage on major leg nerves. Symmetrical left and right of the body. I was returned via wheelchair to my ward. During the next few days multiple blood tests and other tests were carried out. One doctor told me a blood sample was sent to far off Western Australia for analysis in a laboratory. Apparently testing for this one particular pathogen could only be undertaken in Perth. Why? I don't know! The result returned negative. Good. All tests showed no evidence of recent viral or bacterial infections. Nothing. I hadn’t been out of the country for years to catch some exotic disease. No illness, not even a dose of the flu or a cold. How can you become so disabled and not know the cause? This is a concerning thought to anyone. Greatly mystifying to me! Disabled and Bleak Outlook All the staff treated me well. I could not walk and was dependent on a wheelchair. A walking frame provided some standing support for very limited room use. I was experiencing a complete loss of self-balance. Numb from backside and legs down. No leg reflexes. Significant paralysis of all four limbs. Acute abdominal tightness caused moderate breathing constriction. I was tested twice daily for breathing capacity in anticipation I needed artificial breathing assistance via a ventilator. I was administered daily stomach injections to prevent blood clots because of immobility. I have always been a non-smoker. I took solace in this. Additional complications I could do without. I could hold light weight items such as a spoon, fork and knife but all were extremely hard to use. I was unable to open served food or drink lids. Could not write or use a mobile (cell) phone, use buttons and zippers, tie laces or hold a small cup of coffee in one hand. One doctor asked me to count how many of his fingers were held up in front of my face. I counted correctly. Previously there were initially a few instances where vision was blurry but then vision quickly came into focus again. I kept this alarming thought of possible deteriorating vision to myself. My eyesight never gave me problems in the past. Always having quite good vision. There was mild shortness of breath due to tightness felt around the torso. What is happening? How bad can things get? With some anxiety I wondered will I lose the ability to breathe freely? Torso tightness later fluctuated between severe and moderate and was felt daily over the initial few years. I was relieved no airway ventilation was ever required. Facial movements were unaffected. No suggestion of Bell’s Palsy. A condition that affects facial nerves. No indication of Multiple Sclerosis, Parkinson's Disease or Motor Neuron Disease. All these conditions I have heard of. No further Deterioration Doctors asked if I could wiggle my toes up and down. To everyone's surprise. I was able to. I was asked if I was able to stand beside my hospital bed. Assisted by staff and total reliance upon a walker with great effort I managed to stand. A doctor requested me to push against his upper body with an open hand and with as much force as I could muster. Are you sure? I asked. Yes, to test upper body strength. Alright then, surrounded by a few doctors I pushed my outstretched hand against him and nearly pinned him to the wall a couple of steps back. There was a somewhat perplexed look returned. A bit of an unexpected result indicating that I still retained some upper body strength. Although I found it impossible to lift my feet more than a few centimetres, or if you like to imagine just an inch, off of the floor due to leg weakness and a lack of balance. My condition did not deteriorate any further after the first few days while in hospital. By week's end doctors assessed my condition as somewhat stable. With mutual agreement my public hospital bed was moved to other wards five times during my lengthy hospitalisation. Even down a floor to another ward. All wards were at near to full capacity. I was stable and under supervision. I was later advised by doctors that the first course of IVIG probably stalled the progression of CIDP. I understood progression meant breathing reliance on a ventilator machine and total immobility before likely incremental improvement. Specialist Consensus and First Symptom? I agreed to be wheeled in my wheelchair to the once every Friday specialist meeting. The rock star treatment! Lol. On an overhead projector my condition and possible diagnosis was discussed in front of twenty or so experts including the department head Professor of Neurology. Doctors posed questions with pen and notebook in hand. I answered what I knew. At the conclusion of this gathering of medical specialists I was returning by wheelchair to the wards via a lift when quite unexpectedly another person in the lift recognised me and said, Hello how are you? I immediately knew it was the neurologist I saw in Ballarat who admitted me to this very hospital. I said considering everything that's happened recently I was as good as can be expected. I also said see you later up in the hospital ward. He bid me farewell and left the lift. This was the last sight of him until a return appointment from home to the Ballarat medical clinic some months later. Unbeknown to me apparently, he was only available for private patients in the hospital environment. No public patient visitations were to be expected. Was this normal practice in the Australian public hospital system? I didn’t know if that was the case. IVIG infusions are free to Australian residents so long as the criteria is met and signed off by a neurologist once every twelve months for continuing treatment. Specialists later diagnosed CIDP and not GBS as my symptoms were at least eight weeks. The onset of GBS from perfectly healthy to bedridden is usually within days or is almost always under a fortnight. CIDP onset is always much longer being eight weeks at the earliest or much greater in time. A little more than two months before diagnosis I paid for a family paintball day in Melbourne. My legs gave way underneath me on short sprints. No pain. Just momentarily weak legs. I thought this odd and amusing at the time. I attributed this to overworking myself. Even then during the long drive from Melbourne to home l felt a small amount of leg weakness. In hindsight, the first symptom of CIDP that I can recall. Normally I don't jog. St Vincent's Hospital Melbourne had no other patients with GBS or CIDP. Both are rare conditions. Apparently, there is a one in one hundred thousand chance of a diagnosis of CIDP. Long Term Hospitalisation Concerns The isolation of a big city hospital away from familiar faces is very confronting. Initially on arrival I was placed in the intensive care neurology unit with a row of many seriously ill people. Many patients post operative and bedridden. Their shaven heads are covered in long tracks of medical suturing (stitching). A very sobering sight. Medical equipment monitoring everybody. Soon thereafter thankfully I was moved to the ward where as previously described, the woman collapsing with a Hipo was visiting her brother. On one of my five moves to different wards an adjacent patient had suffered a mild stroke and was up and about unassisted walking, talking and using all four limbs very well within a few days. A likeable person with a glass half full attitude. Acknowledging he was a lucky man. Not so for myself, diagnosed with a crippling condition. Prognosis unknown. During my hospital stay my only regular visitor was a weekly visit from a volunteer inter-church counsellor. These visits were really helpful and appreciated. Otherwise, I had no one to confide in. No visitors. Just a very brief single visit from a family member. After a month passed, another family member paid me a full day visit. I was pushed around the large hospital city block in my wheelchair. Along busy Victoria Parade avoiding able-bodied pedestrians going about their busy daily routines. We stopped for a light lunch. A non-bedside meal was great. It can't be understated how terrific it felt to feel the fresh air and warm sun on your face after one month inside. Even if I was in a wheelchair. I’m wondering if this is permanent now? A drastic turn of life events unfolding right before my eyes. Over the preceding month I gradually came to realise I would likely have lifelong wheelchair dependency . One gets a totally different perception on life from a wheelchair. Is it a permanent part of life now? Who knows! Medical staff were not telling anything. Not wanting to give false hope. One morning reaching for my trusty bedside walker I slipped off of the bed and onto the floor. Unseen by nursing staff. Heavily supported by the bedframe. I managed to pull myself up. Luckily I was ok. Mentally scolding myself. Don’t let it happen again! The walker was required to shuffle to the ward shower once daily. I am only able to twist shower taps a fraction of a turn. Dribbling the shower water freely over me. Now my arms and hands are too weak to grasp and hold shower utensils. Although it was offered, I didn’t want nursing assistance. What a predicament to be in. Weak as a baby. Autonomic nervous system dysfunction can occur with CIDP. In my case, hints of autonomic system involvement appeared but thankfully no progression occurred. These serious symptoms range from incapacity to breathe, double vision and sight deterioration with optic nerve damage, bowel & bladder dysfunction, total loss of ambulatory function and cardiac irregularities. All due to nerve and muscle interactions within the body. Symptoms as mentioned may or may not occur. Hence, why my five week hospitalisation and medical specialist uncertainty. I googled as much as l could about CIDP with fumbling hands. Countless times the phone fell out of my grasp and more often than not I’m unable to enter search words with one finger. Loss of finger and hand dexterity caused repeated failed attempts. At home sitting by the desktop computer I could touch type. An impossible task now. Even if I had a full size keyboard. I am barely able to access and view phone photos. For all practical purposes confined to a hospital ward bed. Accompanied by a bedside walker that I was reluctant to use because of extreme difficulty. A ward patient startled the life out of me. In the early hours I opened my eyes to see a fellow in a dressing gown sitting on a chair in the corner of the multi bed ward. He explained it’s too hard to gain sleep. So he stayed awake all night thinking. Thinking about his health and future. He survived a cardio scare. That’s why he was here. Too concerned to sleep. The two of us are strangers. Both of us up for a chat in the very early morning. It’s a very long day when I wake early and gain sleep late at night. Compounded by the inability to move about freely, or at all and the difficulty to access media by phone. Inpatient Rehabilitation 💦 I spent five weeks in St Vincent's Hospital Melbourne followed by nearly a week of inpatient rehabilitation. In a facility even further from home in the eastern suburbs of Melbourne. I wrongly interpreted my transfer was meant to be to Ballarat and closer to home. I misunderstood the brief conversation in the rushed hospital environment where everybody is a stranger. Train of thought interrupted by major upheaval and disruption to daily life. Understandable considering the circumstances. Once the misunderstanding was sorted. I was transferred to the eastern suburbs rehabilitation facility. Once there I discovered the ability to use a walker for short inside walks. I watched through the window from my hospital bed a pair of hot air balloons very low above buildings. Nightly tv news said they made an emergency landing nearby. I thought at least these people had access to the outdoors and were not confined to a hospital. Transferred again. This time I was transferred to Ballarat and to a large regional rehabilitation facility. I was driven there by an ambulance. I sat next to the driver for the two hour trip. It was encouraging that I could actually sit as a passenger and be able to get in and out of the passenger seat unassisted. Fellow Patients There was another patient in the back of the ambulance for the entire drive. A sedated female stroke patient, by appearances not yet at retirement age, nearing end of life. We drove her to the same palliative care facility where my wife spent her last weeks. The palliative building was adjoined to the rehabilitation complex. It was a solemn two hour ride for me. The driver focused on driving and offering little conversation. Not that I felt like chatting. I didn’t mention I had been to the palliative care facility once before. Walker and Red Tape I was admitted to rehab. and to my surprise given my own room. By appearances just like the hospital wards I was all too familiar with. A staff member wrapped my walker handles with red tape. Red tape is replaced with green tape once walking is assessed as safe unsupervised. I was mixed in with recovering stroke and cardiology patients. I spent regular physio sessions among patients clumsily sliding Domino pieces around table tops. Myself more advanced than those with stroke recovery. I began creatively and carefully building a multi level square house from a pile of Domino pieces. Only for it to suddenly collapse under fumbling fingers. Fellow participants enquiring how I was able to do that? I replied I was here not because of a cardiac episode or a stroke. Of course no one had heard of Chronic Inflammatory Demyelinating Polyneuropathy. Both my hands and feet are equally affected by CIDP induced peripheral neuropathy. Can I eventually learn to walk normally unaided? CIDP uncertainty plays mind games with you. Twice a day in the early morning and mid evening l decided to attempt a circuit walk around the ward corridors and nursing station. Outside of structured daily physiotherapy sessions. Against the red tape supervision rules. I felt competent enough as long as I used a wheeled walker. I am not normally one to go against guidelines. I wanted to be proactive. I decided I would pay heed to the advice if questioned. Pushing my walker my hope was to progress from red to green tape. My aim was to complete ten laps. All exhausting work. Rolling past other inpatient rooms. People such as Mark, who was paraplegic from a diving accident and found it hard to face the day. Bed sheets pulled over his body and head. Thinking I'm not wheelchair dependent anymore as I was nearly two months before and now able to use a walker these last seven days. I self-recalled a road trip to Townsville Queensland. How fortunate Max the pilot and I were from the Tiger Moth joy flight forced landing on the then under construction Mackay Ring Road in 2018 with a broken crankshaft sustaining no injuries. Especially spinal injuries like Mark. Thinking of the inhouse gym physio sessions both Mark and I attended. He is in his wheelchair. Apparently, a potential fate I have now avoided twice within the space of twelve months. I rolled my walker past the longest inpatient resident. Leslie, a double amputee. One amputated foot and one amputated arm past the elbow. He wanted the rehab. facility to become his permanent home. Of course this is not allowed. I rolled past the recreation area with its chairs, television and a bookcase of overflowing books and assorted magazines. I rolled past the unattended nursing station and turned back toward the wards. Medical Prognosis Is Unable To Be Given Towards the end of my rehab two female physiotherapy staff were to take me to an adjoining building with a two storey stairwell. A formidable structure in my mind. Attempting the stairwell was very exhausting. I was supported all the while taking small steps and resting legs. Descending the stairs is more of a problem than struggling up to the top. Could have taken a cut lunch with the time it took. Still, it was something achieved. Physiotherapy staff were faultless guiding and physically supporting me on how to walk. They dealt with my strong safety concerns, poor expectations and inability to get a prognosis. Self-balance was still a major issue. Once every four weeks I received a 40g IVIG infusion of Privigen. The initial loading dosage was calculated by patient weight. All future dosages were unchanged even with weight variability. Taken daily, an Azathioprine (immunosuppressant) tablet. Given to counter progression of CIDP. Green Tape Approval All attending doctors were unable to provide a prognosis. Using my walker in rehabilitation, now authorised with green tape I asked a visiting neurologist if this is true. I garnered information from Google. Inquiring from my rehabilitation ward bed. One third of CIDP patients are wheelchair bound for life. One third recover to near their former self and one third are somewhere in between. CIDP by definition is often characterised by a relapsing – remitting course. The severity and duration is unknown. The neurologist nodded in agreement and replied I wasn't in a wheelchair anymore. I also now thought at least I could walk with a walking frame and green tape. Will this be the new normal? A walking stick wrapped with red or green tape is still far beyond my capability. Unease on Ability for Future Home Self Care In an adjacent ward a recovering stroke patient was due to be discharged in the next few days and suffered a lengthy seizure becoming unconscious. Drugs were administered to him to regain consciousness. Not exactly instilling in me the confidence of the rehab. centre’s assessment on my readiness for my imminent discharge. I was wondering how I will cope by myself at home? No at home Care Plan was planned or established by the medical profession. My thoughts were that future welfare dependency was inevitable. One of the facilities visitors was the minister of my local church. A coincidence chance meeting. With myself pushing a wheeled walking frame together we attended the adjoining palliative care facility to give thanks again to staff from two years ago. But the familiar staff I remembered had moved on. The Minister's comforting presence and support was greatly appreciated. I was visited only once in Ballarat Rehab. Day Pass Out Refused A longtime friend agreed to drive me home and back for a day on an upcoming weekend. This meant a return drive of three hours. However, on presentation to the main entry reception the facility person-in-charge refused me a pass out. I was judged too high a risk to be given a pass out due to the current summer heat wave conditions. With disappointment prevailing. I apologised to my driver for the wasted long drive. I would have liked a short one day break from the hospital environment. Now unable due to doctor's orders. I was approaching two months of unbroken hospital stays and still I cannot return home. Within another week I was discharged. Chronic Inflammatory Demyelinating Polyneuropathy Google searches in hospital and rehabilitation did allow me to flush out CDIP knowledge. Once discharged I began an arduous task gathering a list of questions to discuss with my neurologist on the next forthcoming appointment in Ballarat. This second appointment is still months away. CIDP is a rare neurological disorder and targets your body's nerves all of which interact with the muscles within the body. Symptoms vary widely among individuals. Characterised by progressive weakness and impaired sensory function in both legs, feet, arms and hands. Weakened respiratory muscles are a common symptom. CIDP prevalence is approximately 600 people in any one year in Australia of a population of 27 million. Not hereditary nor infectious. Not a psychiatric or nervous disorder. There is inflammation of nerves and nerve damage primarily to the insulating myelin sheaths around nerve fibres. Classified as an autoimmune disease. The disease may occur at any age. More so in older adults beyond fifty years old. There is no known cause of why the immune system attacks the nerves of otherwise healthy people. A positive diagnosis of CIDP is possible with evidence of damage to peripheral nerve myelin from nerve conduction tests and a lumbar puncture. Quadriplegia and or respiratory failure causing death has been cited in rare instances. Guillain-Barre Syndrome (GBS) is regarded as the acute form of the condition. Rapid onset of symptoms distinguishes GBS from CIDP. Symptoms remain chronic for CIDP. The attack on my health is now identified by name. I now was aware my symptoms meant a diagnosis of Chronic Inflammatory Demyelinating Polyneuropathy. Hospital Rehabilitation Discharge 😀 I required home help with housework and to be driven about. I was physically incapable of driving. A home help service was made available usually once per week for the following several months and was provided by local government providers. Prior to approval and following rehabilitation discharge, I needed to seek out and enquire if I met eligibility requirements for this health service. I was told I did meet eligibility. However, there was a monthly fee payable. Also, I qualified for long term podiatry services for a nominal fee. I was thankful for services provided even if it was at a personal cost. In the months after hospital discharge, I used a walking frame with just a walking stick on very brief occasions. My duration of home help care was uncertain. Home Self Care Struggle It was a big struggle to walk. Collect mail from my front yard letterbox. Feed Millie the cat, and 'Tag', a seven year old Fox Terrier dog in the backyard in the initial four months. These four months and many thereafter everything touched was literally like coarse sandpaper. All finger tips upon any contact conveyed a sensation like touching a continuous roll of rough sandpaper. Even to pat the dog and cat. Abnormal nerve activity that never abated. How inexplicable to me. It's quite debilitating to one's wellbeing when you can't enjoy a normal pat on the dog or cat. There was great difficulty twisting household taps and dressing daily. I enrolled in physiotherapy as an outpatient Also hydrotherapy. Unable to write in a legible manner. A little embarrassed about this I signed an X on the paperwork. Staff assured me considering my difficulty in grasping a pen that an x was acceptable. Staff were flexible on my course of physiotherapy and the program was tailored to my needs. My physiotherapy program was extended on multiple occasions. Walking severely restricted by weakened legs, peripheral neuropathy of both hands and feet, (paraesthesia) and CIDP induced severe tightness around the torso. Symmetrical left and right of the torso. Torso tightness may be described as banding, tapering to the spine. Local Hospital IVIG Infusions My local hospital provided monthly IVIG Privigen infusions in their Oncology centre. For people unfamiliar in the setting. A comfortable armchair style infusion chair is provided accompanied with an IV bag and solutions and an infusion pump monitor; this is a portable machine on a stand with its clickety-clack rhythmic beat set to an adjustable programmed flow rate by nursing staff. In due course the old iv pumps were replaced with new silent models. Oncology staff offer patients freshly cut sandwiches and a choice of cold or hot drinks such as juice, tea or coffee. Staff occasionally tempt people with scones and fresh cream. Initially during my first local infusion appointments I was just grateful to hold a hot beverage in two hands and open the lid of a small plastic sandwich pack. I remembered my repeated failed frustrating attempts just a few months previously. One infusion day coincided with my approaching birthday. No need to change dates. I viewed it as just another day. No cake or candles for me. All infusions are carried out in the same wards, with the same familiar nursing staff and the same infusion method my wife received for cancer chemo treatment. The same familiar medical equipment. Two years on. Here I am. Surrounded by everything I wanted to forget. In my mind cancer kills and CIDP cripples. Me, a distressed witness of prior circumstance. I was back in the same environment and building. I reminded myself it's all for the best and left it at that. Accepting the hard physical and mental health challenges that I knew lay ahead. Poor Ambulatory Function I was struggling with poor ambulatory function longer than seven months post diagnosis. For example, the assistance of three people was required to descend a vehicle dealership's long flight of stairs. Assistance was required from the front, back, side and guidance of the guard rail with frequent stops. As I lived alone and struggled daily with CIDP I considered applying for Meals On Wheels. I gathered I did not fit the age criteria for the service. On occasion a family friend, who was a prominent member of a local church, delivered a cooked meal. I greatly appreciated it. More than nine months passed and I was in-effect housebound and isolated. In the latter half of 2019 my mobility had improved and I was not entirely housebound anymore. Medical approval was given to drive a private motor vehicle subject to future review. On the eve of the Covid-19 lockdowns of a five km radius from home. Bitter sweet timing as I have always been a driving enthusiast. Thankfully, driving a private vehicle was not permanently revoked such as all commercial and volunteer driving was. Covid-19 With Virtual Reality & Build A Website Initially during the first twelve months there were abnormal unpleasant foot sensations of crawling ants. Also on legs and sometimes arms to doubt one's sanity. I did not develop hand tremors, leg cramps or have noticeable foot drop. I confronted significant immobility struggles and home isolation in the twelve months preceding the COVID-19 pandemic. As I was immunocompromised COVID-19 vaccines were required. Four injections were completed. I was aware that in the most dire of Covid-19 hospital patients, a hyperactivated immune system triggers a cytokine storm in the lungs, a life-threatening condition. Twelve months of weekly outpatient physiotherapy sessions were COVID-19 interrupted and eventually stopped all together. I needed to think outside the box to address isolation, boredom and limited mobility during COVID-19 and frequent Victoria state wide lockdowns. I purchased Virtual Reality hardware and software for the home desktop pc. I watched 3d movies in a VR cinema. VR offered a very real feeling of freedom, experiences and escape from over twelve months of CIDP immobility. I navigated isolation issues of COVID-19 without infection. I told myself to keep busy for my mental health. Psychically and physically busy when possible. I continued developing my own road trips website. Self-taught through trial and error. A project essential to keep myself occupied in a quiet house. This was the only constructive activity on multiple days. Especially in the initial twelve months. Mental Health I was made aware of a free twelve month government counselling program made available for people to boost their mental health during Covid-19. Although I was fine. I thought this may be a good program for me to view as insurance. In the event I suffered a total CIDP relapse. So I signed up. The female counsellor was supportive and for one hour once every three weeks a local consulting clinic was attended. Home appointments were also approved. I used the service as an outlet to express CIDP concerns and to maintain a positive attitude. Although beneficial, I viewed it as irrelevant unless I had a total CIDP relapse back to square one. I viewed the program as my insurance backup. A positive strategy if the worst occurred again. Unfortunately, CIDP is always full of uncertainty for everybody. No prognosis can be assumed. Needless to say, maintaining a positive mindframe is very important. Difficult to achieve by yourself without some outside support. For those with faith or a willingness to accept. Religious and secular communities are there for reassurance, and practical help. To me this service was invaluable for the weeks and months I spent in hospital as previously mentioned. Don’t ignore support when an opportunity arises. CIDP Five Year Summary The National Library of Medicine (USA) has available scientific literature online of a small study detailing the long term prognosis of chronic inflammatory demyelinating polyneuropathy. A five year follow up of thirty-eight cases with no comorbidities. Source is from, Journal of Neurology, Neurosurgery & Psychiatry. An informative paper the layperson can largely understand. Following is a five year summary after my CIDP diagnosis and subsequent IVIG infusions. The ongoing purpose of infusions is to maintain patient ambulation while encouraging a healthy autoimmune response to the peripheral nervous system. Since late of 2021 no mobility aids or home assists were required. I have no comorbidities with CIDP. Chronic peripheral neuropathy is commonly associated with diabetes. I am not diabetic nor pre-diabetic. Nerve Pain 😨 No muscle atrophy developed. This is an encouraging sign. Although persistent daily neuropathic pain was experienced for three years in the torso and feet. No nerve pain medications were offered. Tempting to ask for but I didn’t want prescription addiction. This was not out of a sense of a noble thing to do. I know high dosage long-term pain prescriptions are decremental to health. With the benefit of hindsight some nerve pain medication should have been requested and taken. Nursing staff occasionally ask patients the level of pain felt on a scale of one to ten. Ten being unbearable and one no pain. I felt about six\seven or higher with my nerve damage. Is this an over exaggeration? Well, there were times lasting up to an hour or so that lying flat on the loungeroom couch at home and staying perfectly immobile was my only option. My own ad hoc positive strategy without prescription meds. Albeit with hindsight, not recommended. At times it seemed like the only option to keep daily flaring nerve pain at bay. Some may seek comfort in alcohol as a pain release. I viewed alcohol as a poison to the nerves. Creating more problems if abused. A few glasses is enough at most. Meds should have been requested. Prescription opioids, no thanks. I always tried to focus on pain misdirection instead. Do light activities for the mind and body to push invasive nerve pain aside. It’s surprising how effective this method can be when put to the test. Another major factor in the decision not to take nerve pain medications was the on-going ability to maintain uninterrupted nightly sleep. This was a great unexpected bonus. How was it possible? After random daily flaring of nerve pain. I don't have the answers. Nerve pain abated somewhat after three to four years. Yes this is a lengthy time. At least it happened. Perhaps down to a two or three on the pain threshold? No separate health issues. Twelve Months Post Diagnosis & Twelve Apostles In the summer months. Having gained driving approval I wanted to drive to the Gibson Steps. These are within sight of the world famous Twelve Apostles. The Twelve Apostles are one of the most visited sites in Australia. The most significant and sought after attraction along Victoria’s Great Ocean Road. There is a wide and relatively short flat walkway from the Twelve Apostles Visitor Centre to the viewing area. However, I wanted a greater challenge to test my leg strength after twelve months of gradual improvement. Perhaps driving to the coast is too much of a test. I was about to find out for myself. I drove solo to the Gibson Steps. A journey of under three hours. Ensuring I stopped for multiple roadside rest breaks. Gibson Steps The plan. Descend down the Gibson Steps cliffside walkway and return back to the top. These steps, meticulously carved into the rugged cliffside, provide visitors with a unique opportunity to descend to the pristine beach below, offering a close encounter with the raw beauty of the coastline. I am a little apprehensive not really knowing if I would require assistance on return to the top. I had been to these steps before I developed symptoms of CIDP. About eighteen months prior. When I was one hundred percent able-bodied. Leaving the cliffside carpark I walked to the top of the steps where a visitor's bench provided seating with expansive views over the beach below and out to sea. I took a moment to breathe in the salty air, feel the cool ocean breeze on skin and began my slow descent guided by the accompanying guide rail for support. As you navigate your way down the Gibson Steps from the clifftop carpark, numbering near the hundred, the sheer magnitude of the towering cliffs to one’s side and the vast expanse of the Southern Ocean stretching out before you create a truly awe-inspiring experience. My legs noticeably weakened every two dozen steps or so. Stoppage for a break. Then continuing downwards. The final oversize cut stone step onto the sandy beach offering the most trouble. Hesitating to go left or right. Stepping onto the hot sand with a sense of achievement. Resting at least thirty minutes. No help was required. I was contemplating the return. A few tourists wandered about the sandy beach. The rhythmic sound of turbulent waves breaking on the reef strewn foreshore some fifty metres away. Now I was confident I didn’t need assistance to return. On the return with multiple stoppages for resting legs, the climb back to the top although extremely exhausting was manageable. A huge personal achievement. Proving a ' have a go’ mindset is helpful in boosting mobility confidence. Three To Four Years Living With CIDP During the initial three years. The need to rest extremely fatigued legs and arms whilst attending appointments, in supermarket queues and public places. Three years of short daily showering and brief house tasks for the same reasons. This brought a forced change in personal presentation. Velcro strap running shoes with no laces. A sock puller for dressing. Trousers and shorts without zippers and buttons. Buttonless shirts . No zippered pullovers nor jackets. I was effectively forced into early labour force retirement. Three plus years to get to near normality. I've always enjoyed driving. Great to not feel significant under the ribcage wincing from torso tightness, (abdominal nerves inflammation?) over every minor highway jolt and bump. It's been more than three years and now I'm also able to walk up to 45 minutes. Initially 15 minutes then to 45. Will this be maintained! Or will I relapse? If not irreparably damaged. Self-nerve repair is possible. During 2022 I wanted to see for myself if my driving ability was up to standard and satisfactory at this time. I completed a thirty-minute driver experience on the Bend Motorsport Park racetrack in my road registered vehicle. A Mustang GT with a six-speed manual transmission. Tough on fatigued legs but safe. Fortunately, all went well and it was a great boost to driving confidence. The full thirty minutes was completed. People say you look well and move reasonably. Yeah well, looks are deceiving with CIDP. One busy long weekend after alighting from my performance car I received loud verbal abuse from an outside dining café patron for parking in a disabled parking bay. The displayed permit unseen. I replied, ‘I have CIDP. Look it up on Google. It 'll scare the hell out of you’. A war between nerves and invisible antibodies throughout most of your body remains unseen to all. Neurologist Appointments and Tests 👍 Undertaken not more than once every twelve months by a neurologist a nerve conduction study revealed improvements in lower limb nerve conduction and functionality. Small improvements greater than fifty months from diagnosis were still achievable. These improvements were not really felt in a practical sense. Indicating further improvements are possible after fifty months. If there is no active nerve demyelination. By way of an explanation. A nerve conduction study involves the combination of two electrodes placed on the skin of an arm or leg above a length of a nerve and electrical conduction is measured between the electrodes. Multiple nerves may be tested. The person quite often experiences a small amount of discomfort when the brief electrical shocks are applied. The shocks are low voltage and so are harmless to anyone. Support Group I considered joining an Inflammatory Neuropathy Support Group. A google search revealed one such group in the eastern suburbs of Melbourne. The nearest group to my home. It’s been over four years and I haven’t met anybody diagnosed with GBS or CIDP. Maybe it's about time I did. Legally I was cleared to drive. A drive to the far side of Melbourne and potentially heavy traffic in a city of five million left me with a feeling of trepidation. Travelling by train wasn’t practical. Upon enquiry, all meetings scheduled every few months always fell on an early Sunday afternoon. Solo and with no backup driver I decided to attend a two hour meeting. For me the drive was over Westgate Bridge and through the road tunnels on freeways to the eastern suburbs. Meetings are held in a room of a suburban library. Upon arrival all are greeted by the group organisers. Tables, chairs, light snacks and drinks are provided. Meetings are attended by perhaps fifteen to twenty-five people. I was by far the longest traveller in the group. A diverse gathering. Young adults to advanced age and all levels of physical disability. A few wheelchair equipped. All in attendance were introduced and name tags adhered on clothing. Every meeting has an invited guest speaker relevant to the field of rare neuropathy conditions. Fields such as nursing, rehabilitation and neurology specialists. Especially relating to GBS and CIDP. I was taken aback by meeting new people and not having to explain CIDP. Many share their individual stories. One man a little younger than me was on double crutches. He had a CIDP diagnosis and said he was amazed I drove so far to attend. I explained my recovery to the present time and his face lit up in hope. Realising he may be able to get back to driving. The benefits of attending such a support group should not be underestimated. People gain insight and encouragement. In a friendly environment. Living With CIDP On approaching five years of CIDP. These residual symptoms include: moderate symmetrical and ceaseless tingling felt underneath both feet. Mild tingling in the hands. Mild torso tightness and mild symmetrical weakness in legs. Normal touch sensitivity in hands and feet has long returned. Taking a daily tablet of Azathioprine has ceased. Obviously, no progression or relapse. Discontinuation of IVIG is unlikely? In my opinion, it is a medical specialist decision! Know one’s limitations. This is particularly good advice on physical disabilities such as CIDP. Be realistic. On the other hand, don't dismiss what life offers. If not permanently bedridden be grateful. The saying, 'There's always someone worse off than you’ is still relevant. Acknowledging this. The obvious answer is to endeavor to focus the mind forward not backward. Although it’s easier said than done. One Hand Coffee CIDP is not predisposed by any prior physical, mental health or lifestyle attributes. It is not hereditary or contagious. It's a rare condition. General Practitioners rarely see it, if at all. All of the above gives an insight into CIDP. At least as applicable to one individual's experience. Hopefully all the aforementioned addresses a lack of awareness and knowledge of Chronic Inflammatory Demyelinating Polyneuropathy. My IVIG Privigen infusion of 40g is administered once every eight weeks. It was initially every four for several years, then extended to six weeks then out to eight weeks. Treatments such as IVIG infusion, plasma exchange and corticosteroids are available to neurologists for consideration. In my opinion it is best to seek, evaluate and trust answers from specialists. During March 2026 a nerve conduction study showed marked improvement of motor nerves responsible for controlling muscle strength. These nerves in turn play a pivotal role in mobility. This latest study was completed by my neurologist of seven years. He candidly expressed his opinion of his thoughts. A frank candid admission referring to my initial hospitalisation in Melbourne of seven years previously. Admitting that back then he thought future daily wheelchair dependency was my likely CIDP pathway. I thought this myself at the time. Now in 2026 he is recommending a six month trial suspension of IVIG infusions. Infusions will not resume if all goes well. Although, he noted, tingling sensory nerves are unlikely to improve. Another nerve conduction study to be conducted in six months. Not the usual twelve month interval. Then perhaps all is finished. Seven years of regular infusions in an oncology centre is a long time. I estimate more than seventy IVIG infusions. Now I will be freed of the medical environment. Freedom from infusion schedules. My final IVIG infusion scheduling falls on the day before Good Friday. Infusions usually are of a three hour duration. More good news. In the days preceding Easter, medical notification was received there is to be no final infusion. Easter is a worldwide celebration in Christianity. I can celebrate the end of seven years of Oncology attendance. All things considered; full quality of life has returned. Time to reflect on my CIDP experience. From diagnosis to now. Once again, it’s great to feel the freedom of walking unassisted inside my own home. Walking freely in the front and backyard. Operate my lawnmower without multiple rest breaks. Enjoy long drives in the diverse Australian countryside. In Victoria, enjoy driving the Great Ocean Road. Be able to enjoy everyday pleasures we take for granted. Pleasures such as a daily morning coffee. A one hand coffee. I often smile while holding a hot coffee. Why? While the hot coffee may taste great. It’s even better to be able to hold the full mug in one hand. A CIDP diagnosis and pathway is full of uncertainty for all. Don't dwell on anything that may never happen or recur. I find it best to be honest and patient with yourself. Don't say why me! CIDP is a treatable condition. Amor Fātī Despite receiving a rare diagnosis of Chronic Inflammatory Demyelinating Polyneuropathy I consider myself very fortunate. Fortunate for meaningful nerve repair to occur eventually and be confirmed by medical specialists. Gradual nerve self-repair is not a prognosis any doctor would give for CIDP. This is not expected with a condition all neurologists define as chronic. Characterised by a relapsing and remitting ambulatory function. I don't seek sympathy. I don’t want accolades. I don’t care for recognition. In my experience empathy for rare hidden conditions is improbable outside of immediate family. I am aware neurological medical research is crucial to find new targeted treatments and cures. Awareness in the wider community of GBS and CIDP would be a boost to foster more research. All people, including you and l, don't get a choice to avoid potential future autoimmune or neurological disorders. These disorders cannot be prevented by lifestyle choices. It is our choice how we choose to respond and live our lives. If nothing else, my CIDP journey offers food for thought. There is a Latin phrase. Amor fātī . Accept one's fate, find the elusive positives and move on. Amor Fati Wayne PREV CIDP NEXT HOMEPAGE
- ON THE HIGH SEAS CRUISE KIMBERLEY ISLANDS of WESTERN AUSTRALIA
The Buccaneer Archipelago of Western Australia These are a group of islands off the Western Australia coast. The nearest town is Derby. The closest inhabited place is Bardi. An aboriginal settlement about fifty kilometres away on the coast. The Archipelago is over fifty square kilometres (19 sq. mi) in size. Composed of about eight hundred islands found between King Sound and Collier Bay. Close to Yampi Sound. Huge Tidal Range in the Kimberley Islands The area where our adventure unfolded boasts remarkable tidal ranges, with the water level fluctuating by over ten metres. This unique natural phenomenon sets the stage for the maritime activities that take place in these waters. During the beginning of our journey, two members of our newly acquainted crew were engrossed in the arduous task of hoisting up the ship anchor. The atmosphere was filled with the resounding noise of the heavy chain being retracted, link by link, as it emerged from the depths below. Meanwhile, one of the two crew members ensuring the smooth and efficient operation of this crucial process. Diligently sprayed the chain with a water hose, adding a touch of fluidity to the otherwise mechanical task. Amidst this bustling scene, Skipper Steve 'Tux' commanded the wheelhouse of the MV Oceanic with unwavering focus and determination. His presence was a testament to the dedication and responsibility that comes with steering a vessel through challenging waters. It was evident that his time was not solely dedicated to leisurely activities such as light reading in the captain's chair; rather, his role demanded constant vigilance and quick decision-making. As the ship's engine hummed in the background, a subtle reminder of the power that lay beneath the surface, our belongings were neatly stowed away. Swags, pre-rolled and strategically placed on the roof of the wheelhouse, symbolised our readiness to embark on the next leg of our journey. The anticipation of departure hung in the air, mirroring the ebb and flow of the tides that defined this remarkable maritime environment. Traveldriven CRUISE KIMBERLEY ISLANDS BUCCANEER ARCHIPELAGO CREW PULLING UP ANCHOR CAPTAIN STEVE HARD AT WORK ROLLING UP THE SWAGS SHIPMATES TAKING IT EASY ROLLED UP SWAGS ON ROOF ITEMS DRYING ON SIDE RAILING WATCHING A TOUR SHIP MOTORING AWAY The MV Oceanic captain Steve, discussing the famous aviator pioneer Kingsford Smith and his Kimberley forced landing site. On 31 March 1929, enroute from Sydney to England, the Southern Cross aircraft with Kingsford Smith at the helm made an emergency landing on a mudflat near the mouth of the Glenelg River, in the Kimberley region of northern Western Australia. The Southern Cross was found and rescued after a fortnight's searching. Dubbed the 'Coffee Royal' incident after the brew of coffee and brandy which the crew had drunk while awaiting rescue. Traveldriven PREV KIMBERLEY ISLANDS NEXT
- ENJOY BREATHTAKING VIEWS FROM MELBOURNE SKYDECK, EUREKA TOWER
CURRENT FIVE-DAY FORECAST MELBOURNE For residents living in Melbourne or tourists visiting Victoria, consider a day trip or a weekend road trip in Victoria. You can travel by car or use public transport. However, exploring outer regional areas might be more enjoyable by car over a weekend to fully appreciate what the region has to offer. Go to Victoria Day Trips Posts for a few places of interest. Observation Deck Eureka Tower In the city of Melbourne, Victoria. Open daily from noon. Enjoy breathtaking views from the Melbourne Skydeck, situated in the Eureka Tower off Riverside Quay, Southbank in Melbourne's CBD. The Skydeck is located on the eighty-eighth floor, 285 meters (935 feet) above the city streets below. Entry fees start from $33 and can be paid within the ground floor foyer. As of 2026, the Skydeck is recognised as the highest public observation deck in the Southern Hemisphere. Eureka Tower has ninety-two floors, including one underground. A dedicated lift takes visitors directly to the eighty-eighth floor without any stops, ensuring a swift and uninterrupted journey to one of the highest points in the building. This lift is designed specifically for the convenience of tourists, allowing them to bypass the lower floors entirely and arrive at their destination quickly. The direct access not only enhances the overall experience but also minimizes the time spent in transit, which is particularly advantageous for those who may be eager to reach the breathtaking views that await them on the eighty-eighth floor. However, it is worth noting that during the ascent or descent, passengers may experience slight lift wobbles. These gentle movements can be attributed to the lift's high-speed operation and the engineering design that accommodates such rapid travel. While some may find these slight fluctuations a cause for concern, they are generally considered a normal aspect of modern lift systems, particularly in skyscrapers where elevators must navigate significant vertical distances. The sensation of movement can even add an element of excitement to the ride, as visitors anticipate the stunning vistas that will soon unfold before them. The lift journey to the Skydeck takes about forty seconds and the Skydeck occupies the entire eighty-eighth floor. Almost all views are behind large glass windows with expansive views in all directions over Melbourne. A café with a good choice of snacks and drinks also operates within the Skydeck. The Skydeck is a popular spot for tourists and school groups to view Melbourne landmarks from above. The Terrace Once at the Skydeck people will see there is an outdoor area called 'The Terrace', with free access to view a wind in your hair experience and take in the sounds of the surrounding city. The views are through a sturdy all surrounding steel and wire mesh safety barrier. The Edge For an additional entrance fee, and upon presentation of a valid ticket to the attendant of The Edge, members of the public may have access to an exhilarating attraction that promises an unforgettable experience for those daring enough to step outside their comfort zones. This unique feature is designed as a fully enclosed clear glass cube embedded in a thin steel frame that extends an impressive three metres out from the side of the observation deck, providing visitors with a breathtaking view that creates the illusion of standing in thin air. The design of The Edge is not only visually stunning but also meticulously engineered to ensure safety while offering an adrenaline-pumping adventure. As you step into The Edge, you are soon greeted by an unparalleled panoramic view of the surrounding landscape, which can be both awe-inspiring and slightly intimidating. The transparent walls of the cube allow for a 360-degree perspective, immersing you in the sights and sounds of the city below. However, it is essential to note that this attraction is not for everyone; individuals who are fearful of heights or those with pre-existing cardiovascular conditions may find the experience overwhelming and should consider this before purchasing their tickets. The Edge not only offers a thrilling adventure but also serves as a testament to modern architectural innovation. The design incorporates advanced safety features and materials that withstand the elements while providing an unobstructed view. Visitors are often encouraged to capture their experiences through photographs, creating lasting memories of their time spent suspended in the air. For those seeking an adrenaline rush or a unique perspective of the world, The Edge represents an extraordinary opportunity to confront fears and embrace the thrill of being high above the ground. Traveldriven MELBOURNE CRICKET GROUND MCG EUREKA TOWER & YARRA RIVER SAINT PAUL'S CATHEDRAL, FLINDERS STREET STATION & FEDERATION SQUARE WEST GATE BRIDGE THE TERRACE & ENTRY DOORS CITY VIEW & YARRA RIVER GOVERMENT HOUSE PREV VICTORIA NEXT
- MINYIP SHOW & SHINE
Minyip This is a small regional Victorian town in the Wimmera. Three hundred and twenty kilometres (199 mi) northwest of Melbourne. It is in the Shire of Yarriambiack Minyip has a resident population a little over five hundred. The name "Minyip" holds a significant historical and cultural meaning as it is believed to have originated from an Aboriginal term signifying "ashes" or "camping place". The choice of such a name suggests a deep-rooted relationship between the Aboriginal communities and the environment, highlighting the importance of ancestral lands and the practices associated with them. By delving into the origins of the name "Minyip", we are offered a window into the past, inviting us to appreciate the intricate layers of history, language, and culture that have shaped the identity of this place. Minyip was the location for the popular tv series, Flying Doctor's. The series was produced between 1986-92 in the tv country town of "Coopers Crossing". The Minyip Show & Shine has been held in November. For 2024 and 2025 it was held in February. Traveldriven DRIVE MELBOURNE TO MINYIP COOPERS CROSSING GARAGE & OPEN CAFE ACROSS THE ROAD The Shine & Shine was well attended by motorbike riders. Many rode well maintained older bikes from the pre 2000s. Motorbikes on the day were Japanese and USA manufactured. ANZAC SOLDIERS The above Harley Davidson image has a custom painted scene of ANZAC soldiers in single file with a setting golden sun. Spotlessly maintained and a nice saddle seat. SERVICE MEDALS Another image of the righthand side of the Harley Davidson. Note the five war service medals below the seat. A nice Honda 750 four is directly behind. Looks in good original condition. On the far right is a driveable Mad Max interceptor equipped with lights. As seen in the first movie. Old unused bowser pump. In front of a well frequented café in the main street. Mustang did not need fuel. MILLION DOLLAR BUGATTI This light blue Bugatti was said by the driver to be worth one million dollars. The driver not being the owner. He was employed to drive the car from Melbourne to Adelaide via Minyip. A breezy drive. The owner a city millionaire. BUGATTI DASH HANDDRAWN GEARSHIFT PATTERN Note the on dash handwritten gear shift pattern. There is a story there. Looks like a standard H pattern. Should be easy to remember. The speedo and tacho should swap positions. Not a full right hand drive conversion. Mileage of 45,000 km? on the dial. MAD MAX MFP CAR MINYIP SHOW & SHINE WALK PREV SHOW & SHINE NEXT HOMEPAGE
- PICNIC AT HANGING ROCK CAR SHOW
SHOW & SHINE The Macedon Ranges & District Motor Club presents the annual Picnic at Hanging Rock Classic Car Show. The largest car show in Victoria and perhaps Australia. A one-day event. The 37th event was held on February 11th, 2024, at the picturesque Hanging Rock Reserve. Time 8 am to 3.30 pm. Tickets $25 per motor car. GETTING TO THE HANGING ROCK CAR SHOW Hanging Rock is approximately eighty km from Melbourne CBD. On the outskirts of Woodend. On the day, and four km from the Reserve, bumper to bumper traffic was encountered around 9 am. Traffic built up all the way into the reserve parking area. A time of sixty minutes to drive the remaining four km. Some arriving a little later took ninety minutes. People were seated in their cars, waiting in a four-kilometre traffic line to access the Hanging Rock carpark. A man walked by, carrying a camera mounted on a steady cam, recording video. He mentioned that the footage was intended for YouTube. At least one vehicle pulled out of the queue. Unable to cope with the vehicle's rising idling temperatures. A common problem of overheating in much older cars. Reserve parking was on short, grassed paddock grounds. The elevated Hanging Rock is clearly visible from the parking area adjacent to the racecourse situated at the base of Hanging Rock. Numerous car show participants were within the track's inner fencing, moving past the Hanging Rock Café and extending much further down the reserve. Covering quite a large area. Thousands of cars on display. Traveldriven WALKING TO SHOW & SHINE & HANGING ROCK PICNIC'S AT HANGING ROCK ARRIVALS HANGING ROCK CARS, CARS, CARS MORE CARS, CARS AND CARS FIRST CAR TO PHOTOGRAPH WAS THIS SS CAMERO MOVING ALONG, A HSV V2 COUPE HOLDEN AND FOR SALE $145,000 V2 COUPE A MUSTANG 5.0 COYOTE POWER RUFF 'N' TUFF MOTOR CO ENOUGH SAID WILD PONY RACING MUSTANG GT POPPIN RED & TWO REAR ROUND ANTENNA FORD XT FAIRMONT & FLAMES HOLDEN DEALER TEAM PANEL VAN FORD GT 40 TAKEN TO CAR SHOW ON ENCLOSED TRAILER NEVER STARTED GT 40 ENGINE V8 DASH CLUSTER AND STEERING GT 40 AMILCAR FRENCH MANUFACTURED 1921-1940 AMILCAR ENGINE SPARE SPARK PLUGS READY JAGUAR EMBLEM TRANSAM FIREBIRD 455 ON TRANSAM BONNET OR IS IT HOOD? FORD GT's LURKING IN THE BUSHLAND 351 FORD GT FOUND AT HANGING ROCK ROD'S RAT RAT RODS RULE PREV SHOW AND SHINE NEXT HOMEPAGE
- HOT RODS IN THE GRAMPIANS SHOW & SHINE
Halls Gap in the Grampians and the annual Hot Rod Show and Shine, February. A weekend in Halls Gap. Halls Gap is a town in Victoria and surrounded by the Grampians National Park. The town is in Fyans Valley between two ranges. The Grampians National Park (Gariwerd), commonly referred to as 'The Grampians', is a national park located in Victoria. The 167,219-hectare (413,210-acre) national park is situated between Stawell and Horsham off of the Western Highway. About a twenty minute drive from Stawell the closest regional town. Halls Gap has a population of about four to five hundred. The drive from Melbourne takes about three hours, following the Western Highway and then taking a left turn off at Stawell onto Grampians Road for an additional 25 km. Traveldriven ROLLIN HOT RODS HOT RODS ARRIVAL IN HALLS GAP SKY BLUE HOT ROD UNDER THE TREES ROD RUN STICKER AND CAR ENTRANT 66 HOT RED ROD DARK BLUE AND WHITE TONE WHITE RIMMED TYRES NICE MATCHING RUNNING BOARD LARGE CHROME GRILLE BUICK 1956 ROADMASTER PARKED AND READY COPS ARE DISLLUSIONED, TIRED, JADED AND FADED *STATE TROOPER* OLD SKOOL ROD REAR TYRES EXTEND FAR OUT FROM BODYWORK READY TO RUMBLE Row of hot rods Yellow hot rod suicide doors Hot pink hot rod and trailer Bright green Ford & motorsport rocker cover triple wipers Bright lime green hot rod with theme trailer and drive-in stand with side window food tray Red hot rod with rear suicide doors Red mustang with side vents mustang in neat and tidy trim Early model mustang interior left-hand drive PREV SHOW & SHINE NEXT HOMEPAGE
- STAY IN BROKEN HILL & SILVER CITY HIGHWAY
A group of feral goats crossed the highway fifty km from Wentworth. Also encounted were small swarms of locusts over the Silver City Highway. - Traveldriven Mildura A city with a population of over thirty-five thousand residents (2025) is inside the Victorian border and it is a distance of thirty km to the small town of Wentworth on the drive to Broken Hill in New South Wales. Mildura is a large fruit, grapevine and irrigation district. Broken Hill Is the only large mining city in the far west of outback New South Wales. Connected to Wentworth NSW by the fully sealed Silver City Highway and then onto Mildura in Victoria. Broken Hill's hot desert climate, combined with an average rainfall of 235 mm makes it a hard place to enjoy year round. Resident population is greater than 17,000. Many accommodation options are available. Broken Hill driving distance from Sydney is 1,150 km. If driving from Sydney, drive Sydney to Nygan where the Barrier Highway begins then onto Cobar, Wilcannia and Broken Hill. Driving distance from Melbourne 836 km. I was driving solo, a distance of almost 700 km from the Wimmera in Victoria. Silver City Highway The Silver City Highway connecting Broken Hill to Victoria is a fully sealed highway. Sections of road are unfenced with wandering livestock and wildlife. The area on occasion, may have severe weather of extreme heat or torrential rainstorms. Embarking on the Silver City Highway journey from the town of Wentworth, NSW, to the iconic destination of Broken Hill in a powerful mustang GT is an experience like no other. Covering a distance of 265 km, this road trip offers a blend of adventure, natural beauty, and unexpected encounters. As you cruise along the highway, the landscape transforms before your eyes, showcasing the diverse Australian outback scenery. Just fifty kilometres out from Wentworth, you might come across a group of feral goats leisurely crossing the road, adding a touch of rural driver beware of wildlife to your drive. The presence of small swarms of locusts hovering over the road creates a surreal sight, reminding you of the delicate balance of nature in this vast land. Amidst the vast expanse of the outback, you may encounter wandering sheep and horses, a testament to the agricultural heritage of the region. The occasional sighting of kangaroos hopping across the horizon, and hopefully not across the road in front, adds a touch of wildlife to your journey, highlighting the unique fauna that call this area home. Each passing kilometre on the Silver City Highway is a testament to the untamed beauty of the Australian outback, offering a glimpse into a world where nature reigns supreme and surprises await at every turn. From unexpected encounters with local wildlife to the ever-changing landscape, this road trip in a mustang GT is a memorable adventure that captures the essence of the Australian outback in all its glory. Coombah Roadhouse. The only service stop between Wentworth and Broken Hill is often closed. Understood to be closed into 2025 with no reopen date advertised. If open, diesel and 91 octane petrol available only. Road trains do operate on the Silver City Highway. It's a distance of 265 km or three hours' drive between Wentworth and Broken Hill with no fuel or food services available. Menindee Lakes The small settlement of Menindee is one hundred and ten km from Broken Hill along the fully sealed Menindee Road. Menindee Road joins the area known as Sunset Strip. The Sunset Strip follows the edge of Menindee Lake which is a very large lake by surface area and is the largest lake of four main lakes in the group. Many dead trees stand in the lake. A number of holiday shacks or older style homes line Sunset Strip. Residents of Broken Hill use the lakes for watersport recreational activities. Very often the lakes have little or no water being in a desert environment. Droughts are common. Sunset Strip appears to have very few people seen going about daily activities as does Menindee. Very limited or non-existent retail services are available. Kinchega Woolshed is available for the general public to inspect. A short drive less than ten km on unsealed roads from the Menindee lakes. The woolshed was one of the largest in New South Wales in its heyday. Now a historic relic of the past. Shearers were employed by the owners of the now ruined Kinchega Homestead. Traveldriven MILDURA VICTORIA GOOGLE MAPS BROKEN HILL GOOGLE MAPS MENINDEE LAKES GOOGLE MAPS BROKEN HILL CURRENT FIVE DAY WEATHER FORECAST DRIVE MILDURA TO BROKEN HILL WAYSIDE REST BREAK BESIDE THE MURRY RIVER BETWEEN MILDURA & WENTWORTH BIG LIZZIE RED CLIFFS 'BIG LIZZIE' THE WORLD'S LARGEST TRACTOR LOAD CAPACITY 80 TONS BUILT 1915. USEAGE WAS TO CLEAR BUSH FOR FARMLAND. COOMBAH ROADHOUSE CLOSED NO SERVICES (2022\2026?) COOMBAH ROADHOUSE CLOSED UNTIL FURTHER NOTICE ENTRY SIGN SILVER CITY HIGHWAY LINE OF LODE MINERS MEMORIAL TOP LEFT THE BIG BENCH Line of Lode Road VIEW OF BROKEN HILL FROM THE BIG BENCH ON THE BANKS OF THE DARLING RIVER NEAR MENINDEE NSW 110 KM FROM BROKEN HILL ALONG THE FULLY SEALED MENINDEE ROAD OUTBACK HISTORIC WOOLSHED KINCHEGA, NEAR MENINDEE NSW PREV NSW NEXT HOMEPAGE
- SILVERTON & OUTBACK PUBS NEW SOUTH WALES
Green grass is rarer than gold in Silverton. -Traveldriven Silverton The town is a famous Australian outback destination. Known for its outback scenery and locations for movie sets. Population is about fifty residents. Silverton is twenty-six kilometres north-west of Broken Hill on a sealed road. Broken Hill is a little over 1,100 km west of Sydney and 850 km north of Melbourne. The town was established after the discovery of rich silver deposits. These deposits later diminished out. Silverton is often referred to as a ghost town and is often frequented by day trip tourists in the cooler winter months. As of 2026 Silverton has: One working hotel with film memorabilia One modern bakery. One church Mad Max 2 Museum. Working Artist Gallery. Caravan/camping area with an amenities block. There are some derelict old dwellings about the town and some scattered housing. A historic jail with-out-buildings now used as a museum. The main street has several closed public buildings dating back pre-1900. Large tourist buses do frequent the town. Almost all the town roads are unpaved but these are still good for all types of vehicles. A shallow creek crossing with a concrete base must be driven over to enter the town. The creek named Mindioomballa Creek seldom flows water. The creek is only a concern if very recent rare torrential rainstorms have passed through. The creek crossing is about six hundred metres from the hotel. Silverton Hotel The original hotel opened in 1884 and was replaced a year later by a two-story building. This burnt down in 1918. Ruins of the burnt hotel are preserved to this day. The ruins are at the rear of the current hotel in a green grassed courtyard. On the other side of the courtyard are hotel accommodation units. Green grass is rarer than gold in Silverton. The hotel is open daily for patrons and meals may be ordered and eaten in the large adjoining and covered seating area (beer garden). Film memorabilia cover the interior walls of the hotel. As well as the Mad Max ll film, numerous big budget movies have been filmed in and around the Silverton area. Traveldriven ENTER CLICK/TAP SILVERTON GOOGLE MAPS BROKEN HILL GOOGLE MAPS DRIVE MILDURA TO BROKEN HILL Bullet riddled road sign on the Silver City Highway between Mildura and Broken Hill PIG MELONS? SILVER CITY HIGHWAY Silverton Hotel with replica Mad Max car. Photo taken 2008 GREEN GRASS IS RARER THAN GOLD IN SILVERTON self-contained accommodation is rear of hotel opposite the ruins and green lawn. RUINS OF BURNED OUT SILVERTON HOTEL THE SILVERTON HOTEL OUTBACK PUBS Silverton landscape Silverton scooter PREV NSW NEXT
- TIGER MOTH FORCED LANDING MACKAY & GLADSTONE QUEENSLAND
ENGINE EXPLODED. EIGHT HUNDRED FEET UP "MAYDAY MAYDAY MAYDAY" -Max the pilot GLADSTONE A Queensland coastal city 517 km north of the state capital Brisbane. Urban population is greater than 45,000. Approaching Gladstone by road the city is dominated by a power station. This gives the city a real industrial look. Gladstone is home to the retired patrol boat HMAS Gladstone. The ship is in dock on public display in the Port of Gladstone. Overnight motel accommodation was in Gladstone CBD off Goondoon Street. MACKAY The city is almost one thousand kilometres (600 mi) north of Brisbane, on the Pioneer River. Population is greater than eighty thousand. Mackay is nicknamed the sugar capital of Australia because its region produces more than a third of Australia's sugar. Two nights were spent in Mackay. Accommodation was at Rydges Motel. Time allowed for a cool swim in the refreshing water of the local Bluewater Lagoon. These are three tiered lagoons in Mackay’s city centre. A safe stinger-free swimming environment. Great place to cool off and relax. Family friendly and free admission. There is a waterfall and water slide connecting the lagoons. Café and BBQ facilities are onsite. GLADSTONE GOOGLE MAPS MACKAY GOOGLE MAPS MACKAY BLUE WATER LAGOON TIGER MOTH MUSEUM JOY FLIGHTS While in the tropical coastal city of Mackay I chose to take a flight in a Tiger Moth. I noticed flights advertised on a billboard near the Mackay Airport, and since it was something I had always considered doing, I booked a half-hour joy flight from there. When I paid for the flight, staff assured me all their aircraft were certified and that both their planes and pilots had maintained a spotless safety record over decades of flying operations. With the pilot seated in the rear seat, and me in the front, our Tiger Moth had just flown over an extensive mangrove area returning to the airport on the city fringe. Mangroves are a known habitat for saltwater crocodiles. A loud bang was heard and a football size ball of black smoke rose above the engine. Our lone spinning propeller stopped dead. The engine fell silent. Max the pilot radioed and called a “Mayday, Mayday, Mayday”. Three Mayday calls are a general emergency distress call to all aircraft and air traffic control in the vicinity. For us, this meant southern Queensland. Max was a pilot with fifty years of flight experience and approaching retirement. Max radioed over the intercom. "Will put her down below on the right". I looked to the right. I could see small gravel roads and cane fields far below. I gripped the side of the open cockpit and braced my feet for impact. I stayed silent. Best to let Max do his job. I was glad of the tight seatbelt harness. Before the flight there was a routine mandatory pre-flight safety briefing. In the event of an unlikely emergency pull the intercom cable out from the airframe panel to cleanly escape a water ditching. We weren't over water anymore. Tiger Moth Forced Landing Looking forward and eyes wide open I wanted to be aware of the surroundings when we touched the ground. I wondered if Max had suffered a medical episode. I'm an unfortunate victim and wondering now how I will survive. We banked right, glided above an unfinished overpass, and in a straight line touched down and rolled to a stop. Unpowered flight time to touch down on the unsealed road was five minutes thirty seconds. My video camera is still rolling and out of focus capturing thin air and audio of rushing wind. I was more concerned with bracing for the expected hard landing. I was thinking for the previous five minutes we could get seriously injured or worse. No panic, more of a calm foreboding feeling until touch down. Road workers ran to us from everywhere. Eager to see if we were ok. A supervisor quipped “you can't land here”. Max replied we had no choice. Even though the airport was five minutes flight away we wouldn't have made the runway. Engine oil was splattered throughout. Max radioed be careful getting out over the aircraft wing as the oil would be very slippery. All emergency services were called and arrived on the scene some 45 minutes later. All arriving together. Fire truck, ambulance, police and Mackay Airport authorities. Upon inspection, Max thought the crankshaft had broken in mid-flight causing the plane to come down. Perhaps requiring $70,000 in repairs. We all milled around the front of the aircraft and Max jokingly said, 'You Victorian's come up here to holiday and we nearly kill you'. ‘First prang in fifty-one years’, Max commented. Emergency personnel offered me a return to the ambulance station for observation as Max and I had been through a near death experience. No thanks. It gave us a fright, but all is ok. After about an hour of aircraft checks and questions, emergency personnel returned me to Mackay Airport. I carefully drove to my accommodation where I stayed for the remainder of the day. I had no one to confide in as this was a solo three week road trip. I did not ask for a $200 flight refund. As I thought the money was well spent to get out in one piece. Next morning I drove on to Bowen. Almost 200 km and a two hour drive. The plane incident was easily put behind me. Technically a forced landing. However, at the time I thought a crash was the likely outcome. Well done to Max the pilot. In reality he saved both our lives insuring no injuries. BURIED IN THE FINE PRINT The Civil Aviation Safety Authority (CASA) states this is a Warbird and operated in the LIMITED category, passengers must understand that: The design, manufacture and airworthiness of the aircraft are not required to meet any safety standard recognised by CASA CASA does not require this aircraft to be operated to the same degree of safety as an aircraft on a commercial passenger flight. The passenger flies in the aircraft at his or her own risk In undertaking this Adventure Flight I accept the potential risks The Mackay Ring Road is a bypass route near Mackay, Queensland, Australia. Stage 1 completion was 2020. Stage 1 is 11.34 km in length and connects the Bruce Highway to the south of Mackay (at Stockroute Road) with the Bruce Highway to the north of Mackay (near Bald Hill Road). The bypass involved constructing a new bridge over the Pioneer River and an interchange with the Peak Downs Highway. MACKAY RING ROAD STAGE ONE Tiger Moth joy flight and crash (forced landing) at the time of the still under construction, Ring Road Stage 1, Mackay Queensland. TIGER MOTH FORCED LANDING ON RING ROAD EARLY MORNING BEFORE THE FLIGHT ALL GOOD TO GO THE OTHER TIGER MOTH IN PERFECT WORKING ORDER MACKAY AIRPORT HMAS GLADSTONE SHIP'S BELL HMAS GLADSTONE SHOWN AROUND ON PRIVATE TOUR PREV ROADTRIP TOWNSVILLE NEXT PREV QUEENSLAND NEXT HOMEPAGE
- FREE CAMPING AUSTRALIA & CAMP LAKE LONSDALE
Free Camping with a Tear Drop The advantages: Less expensive to buy than normal size van Easy to tow at all speed limits. Low weight Fuel efficient for long road trips No hassle at fuel stops and general driving A real bed, kitchen. An awning for shade Battery for electrics. Good resale value Lake Lonsdale There are countless free camping sites in Australia. These sites range from mountains to the coasts, throughout regional Australia to the remote Outback. One such location near to the Western Highway connecting Melbourne to Adelaide is the scenic Lake Lonsdale. This large lake with the expansive Grampian mountain ranges as a backdrop is a ten minute drive from the small city of Stawell and is a little over two hundred km west from Melbourne. Highly recommended by interstate travellers and locals alike as a spectacular camping spot. This area has natural bush, mountain and lake views and is far from any highway traffic noise. All camping area's offer easy access to two wheel drive and towed vans. Camp fires are allowed and many camp sites may be found with shady trees. Often a cool early evening breeze off of the lake will temper the hot summer days followed by clear starry nights over the lake and the mountainous background. In low rainfall years Lake Lonsdale may become dry as it is a water reservoir used by a water authority. Lake Lonsdale has several access roads from the Western Highway. The most direct and shortest is via Deep Lead along Red Hill Road. This is a well made gravel road with no corrugations of four km suitable for towed vehicles and connects to the fully sealed Sandbar Road which partly skirts around the lake and onto Halls Gap. Alternatively drive the longer fully sealed Sandbar Road via the Western Highway turnoff from the Melbourne side of Deep Lead to the numerous camping area's. Flat Rock Free Camping Australia A popular free camping area at the lake is called Flat Rock. Located about two hundred metres off of Sandbar Road. The unsealed entry road is suitable for all types of vehicles. A small block of clean modern drop toilets are onsite. These are cleaned several times per week in the summer months. Lake swimming is possible although dead timber is a common sight on the lake foreshore and water reeds are common. Boat fishing is popular and when conditions are suitable a good haul of freshwater yabbies are often taken out of the lake by fishermen in their tinnie boats. In the warmer months anywhere from one or two, to dozens of free camps could be seen at Flat Rock. Camp sites never seem to get cramped as there is a large area available. The boat ramp area is about a short five minute drive from Flat Rock and has a launch jetty, breakwater and toilets. As a free camping stay overnight or of a few days Lake Lonsdale is one of the best between Melbourne and Perth in Southern Australia. A distance of over 3,400 km. Only rivalled perhaps by free camping along the Nullarbor Cliffs of the Western Australia and South Australia border region. Go to the Nullarbor Cliffs post on this website. https://www.traveldriven.net/single-post/2017/07/11/australia-big-righthand-turn-nullarbor Another highly recommended free camping site by travellers is Lake Lascelles. The lake is about five hundred metres from the small town of Hopetoun in Victoria. There are shower and toilet facilities at the lake. Hopetoun is in North Western Victoria. Go to the Lake Lascelles post on this website. https://www.traveldriven.net/single-post/enjoy-a-secret-weekend-getaway-at-lake-lascelles Traveldriven CURRENT LAKE LONSDALE WEATHER DRIVE MELBOURNE - LAKE LONSDALE - ADELAIDE TEAR DROP CAMPING LAKE LONSDALE FREE CAMPING FLAT ROCK LAKE LONSDALE FLAT ROCK FREE CAMPING BESIDE THE LAKE BACK DROP TO LAKE LONSDALE BIRD LIFE & BACK TO NATURE PREV VICTORIA NEXT
- TEAR DROP'S ON THE ROAD & DO YOUR ROADTRIP TO NARRAWONG
Teardrop Travel There are a huge range of vans travelling Australian roads, each designed to cater to the diverse preferences and needs of travellers. From spacious motorhomes equipped with all the amenities of home to towed caged trailers that can carry everything from bikes to kayaks, these vehicles are all seeking out new relaxing or exciting destinations on both short weekend getaways and long, adventurous road trips. Among this vast array of options, one type of van seen less frequently on the highways of Australia is the teardrop camper. Teardrop campers are uniquely designed with their distinctive teardrop shape, which not only gives them a charming aesthetic but also makes them highly aerodynamic, improving fuel efficiency during travel. These compact vans typically feature a rear outdoor kitchen allowing travellers to prepare meals while enjoying the fresh air and scenery on offer. Inside, they provide comfortable sleeping arrangements for one or two people, with rooftop and sidedoor privacy flyscreens allowing air flow making them an ideal choice for couples or solo adventurers looking to explore the great outdoors without sacrificing comfort. One of the standout features of teardrop campers is the ease with which they can be set up for a relaxing stay. Many models come equipped with handy, easily erected shady awnings that provide a perfect spot to recline underneath, offering protection from the sun and creating an inviting space for socialising or simply unwinding from work or home duties left behind. This element of convenience is particularly appealing to many travellers who wish to immerse themselves in nature without the complexities that often accompany larger RVs or motorhomes. Rising Cost of Living & Travel Despite the rising cost of living concerns many Australians face, teardrop campers represent a practical and hassle-free way to experience the tranquil surroundings found in campsites throughout the country. Whether it’s the allure of free camping in breathtaking national parks or the comfort of established van parks with convenient facilities such as restrooms, showers, and communal camp kitchens, teardrop campers allow individuals and couples to enjoy the freedom of the open road while remaining budget conscious. Often these tear drop vans invoke the travelling community to approach and share tips and experiences, creating a sense of camaraderie among those who appreciate the simplicity and charm of these small yet functional vans. The compact nature of teardrop campers also means they can easily access remote locations larger vehicles might struggle to reach, opening up a world of hidden gems and serene spots away from the crowds. Teardrop campers, with their unique design and practicality, offer a way to explore Australia's diverse landscapes, making them a viable option for those seeking adventure or relaxation. Whether parked by a tranquil beach, nestled in a forest, or overlooking a stunning vista, these compact campers allow travellers to create lasting memories while enjoying the beauty of the Australian outdoors. Narrawong Holiday Park If based in Melbourne why not do a road trip loop via the town of Mortlake to Narrawong and back along the Great Ocean Road. Narrawong is 19 km from the coastal city of Portland, Victoria. Although Narrawong has the Sawpit Free Camping Ground it is not within walking distance of any beach. Instead, it takes about a ten minute drive to the closest beach. Narrawong Holiday Park is beachside and is a privately owned and run caravan park. It has a kiosk for basic food and supplies, modern camp kitchens and amenities blocks. Onsite cabins powered and unpowered sites. Unpowered sites from $49 per night (2025) in peak season. Traveldriven Website NARRAWONG HOLIDAY PARK DRIVE MELBOURNE - NARRAWONG FOUR HOURS OR DRIVE VIA GREAT OCEAN ROAD SIX HOURS PLUS NARRAWONG HOLIDAY PARK ROADSIDE REST STOP TEARDROP AWNING EXTENSIONS NARRAWONG RIVERSIDE UNPOWERED CAMPING HAPPY CAMPER NARRAWONG SURRY RIVER NARRAWONG BEACH SURF LIFE SAVING VAN? NARRAWONG BEACH SWIMMING NARRAWONG CAMP KITCHEN & COOL OFF MIST PREV VICTORIA NEXT
- ESPERANCE WANDERING
SWIM, FISH, SURF & DRIVE ESPERANCE Esperance is a coastal town with approximately twelve thousand inhabitants, located just over seven hundred kilometres (450 miles) from Perth. The cool waters of the Southern Ocean wash along its shores. The climate and landscape resemble those of Victoria, though Esperance experiences longer warm periods during summer. Esperance has a major deep water export port. While Northern Western Australia sees peak winter visitor numbers, the southern regions, including Esperance, are in their off-season. Esperance is renowned for stunning beaches, fishing and surfing. BAY OF ISLES Offshore of Esperance is the Recherche Archipelago, comprising over a hundred islands and forms the Bay of Isles. In the past, several shipwrecks have taken place in these waters. In early European history of Western Australia, the pirate Black Jack Anderson made his base on the largest island, Middle Island. He and crew menaced sailing ships in the larger Archipelago until meeting his violent end on Middle Island. WILDLIFE ENCOUNTERS Visitors to the Recherche Archipelago can embark on boat tours offering a unique opportunity to observe and interact with the diverse marine life that thrives in these waters. One of the highlights of these tours is the chance to spot majestic sea eagles soaring overhead. Tour guides often provide guests with the opportunity to feed these magnificent birds by enabling a passenger to toss food onto the surface of the seawater, creating a thrilling experience as the eagle's swoop down with grace and precision to catch their meal. In addition to sea eagles, the archipelago is home to a variety of marine mammals, including playful sea lions and sleek fur seals. These creatures can often be seen lounging on the rocky shores providing ample opportunities for wildlife photography and observation. Occasionally dolphins are seen up close skimming ocean swells alongside the tour boat. TOURING THE ARCHIPELAGO Boat tours around the Recherche Archipelago can extend ten kilometres or more offshore, allowing participants to explore a significant portion of this stunning marine environment. While the tours do not typically include landings on the islands themselves, they often provide a unique experience for those looking to enjoy the beauty of the islands. One particularly appealing aspect of these tours is the opportunity to swim from the rear of the tour boat in a secluded bay along the Esperance coastline, where the waters are calm and inviting. This refreshing dip offers a perfect way to cool off while surrounded by breathtaking scenery. GREAT OCEAN DRIVE If a boat tour isn't your preference, consider driving Western Australia's own version of the Great Ocean Road as seen in Victoria. This scenic drive is a thirty-five kilometre loop starting and ending in Esperance. About twenty km is of ocean frontage and some five km along the edge of Pink Lake. However, the lake is no longer pink. As of 2025, the winding road is in excellent condition. Drivers can take in rocky headlands, peaceful bays, and wide ocean vistas with small rocky islands close in to shore. The journey begins from Rotary Lookout, which provides a full 360-degree unobstructed view of parts of Esperance and the offshore archipelago islands. There are numerous rest areas with ocean views and turnoffs for surfing or swimming. Having driven the Great Ocean Road in Victoria many times, I can say that long stretches of the Great Ocean Drive surpass the scenic beauty of Victoria's Great Ocean Road. That speaks volumes about this drive. STONEHENGE IN ESPERANCE To one's amazement just out of Esperance one can come across a full-sized replica of Stonehenge as it would have looked in 2000 BC in pristine condition. The construction is made of 137 quarried stones of Esperance Pink Granite. The structure sits on farmland 18 km out of Esperance. Completed in 2011. Total weight of the stones 2,500 tonnes. There is an entry fee to wander about the huge slabs of precisely assembled rock. Traveldriven ESPERANCE GOOGLE MAPS CURRENT ESPERANCE FIVE DAY FORECAST DRIVE ESPERANCE GREAT OCEAN DRIVE DRIVE PERTH - ESPERANCE RETREATING WAVES, ESPERANCE ESPERANCE JETTY ESPERANCE WATERFRONT ESPERANCE FORESHORE ESPERANCE STREET ART STREET ART ESPERANCE STATUE ON THE FORESHORE DOME EATERY DOME BREAKFEST CRUISE OFFSHORE ISLANDS BAY OF ISLES, FROM ROTARY LOOKOUT FEEDING SEA EAGLES FUR SEAL ON ROCKS HAND FEEDING FISH SWIMMING IN OPEN WATER GREAT OCEAN DRIVE OCEANSIDE VIEW LOOKOUT VIEWS OFFSHORE ISLANDS OCEAN VIEW OF WEST BEACH ESPERANCE ESPERANCE SURF STONEHENGE OF ESPERANCE STONEHENGE SIGN PREV AUSTRALIA 2025 NEXT











